Brains Are Weird - Blog Posts

i have a mysterious incredibly vivid memory of my mom saying... something to me in the parking lot of this one specific shopping center, sort of in the middle back of the lot but a bit to the side, and I was getting out of the back right seat of the car. I am reminded of it every time I go to that parking lot and am getting out of the right seats of any car. what was being said? i have no bloody clue

“Oh boy! It looks like I’m going to make it through the entire night without a single nocturnal panic attack!”

The nefarious 6:41am:

01:38 AM

I should be unconscious right now, but I can’t sleep. I put the distractions aside, and lay down, and close my eyes... That’s when my thoughts catch up with me. You would think that at a certain point, the human body would simply run out of tears to cry; but if there’s a limit, I haven’t hit it yet this evening.

There are almost certainly connections between the different ideas, images, and recollections currently vying for attention inside of my head. I’m not sure I’m in the right frame of mind however to go mining for insight. Perhaps later.

On Monday, I have my MRI. As tests go, it’s fairly mundane; the most prevalent complaint is that you are required to stay still for a long time inside of a loud, clunky machine.

The MRI is to be conducted both with and without contrast. This means they will need to insert an IV catheter at some point, and inject a special fluid that the scanner can detect.

I’ve had my blood drawn plenty of times. I had an IV last time I was in the ER. (It was certainly annoying; but no more painful than the aforementioned blood draws.) However, my mind continues to gravitate towards - and get stuck on - this step.

I think perhaps it’s because I’m coming to realize that what rattles me most is the perception that I am no longer in control of a medical situation. The more steps required in a given appointment, the more likely the providers will have an efficient operation going, the more likely they are to maintain a pace faster than I am comfortable with.

Last week I had my nerve conduction study / electromyograph performed.

The nerve conduction study was first. I had a very nice technician; a young man named William. He listened to me earnestly when I explained my anxiousness; and did exactly what I asked: took his time, explained everything, and was honest with me about any discomfort I might experience.

Prior to the test, I had been instructed to wear clothing that would leave my arms and legs easily accessible (e.g. t-shirt and shorts, weather permitting). I settled for a sleeveless shirt and skirt that could easily be hiked up as necessary.

Apparently I chose poorly, as William provided a blanket which which I could cover up and prevent my thighs from flashing immodestly. We actually had a really nice conversation about it; where he explained that this was de facto policy for female patients, and I noted that I wasn’t opposed, merely surprised... Because my experience to date had, of course, been so different.

The test primarily consisted of William applying electrical shocks in various places; and measuring the corresponding signals reaching the ends of my extremities. He described this process as “More annoying than painful”, and that’s an assessment that (barring a few full-power shocks) I agreed with.

(To his credit, William had himself been shocked many times as part of his training; and was both sympathetic and informative as a result.)

After an hour of this, William subbed out and the neurologist subbed in; tasked with performing the electromyograph.

At the end of my ER visit, I was referred to the Neurology department; and forewarned that they would most likely want to order this test and that they were sorry it was so uncomfortable. I had similar conversations with my own provider, and the nurse practitioner I saw at Neurology.

The entire time I was thinking to myself: “How bad could it be”? The information I could find online explained that the test was conducted by inserting a needle into various muscles; although not particularly fun, this was no worse than my usual intramuscular injection regimen. Likewise, I undergo electrolysis every two weeks - surely that was the high bar for outpatient-induced pain?

Ah, well.

The neurologist very kindly ensured that I was prepared and had forewarning, and then inserted the needle in the muscle between my thumb and forefinger. I determined later that the needle was conical in design; which made for a less traumatic wound, but also perhaps more discomfort on insertion. Regardless, it was bearable.

I was not prepared for the next step: the neurologist had to move the needle about; not unlike swinging a television antenna around the room in search of better reception. This had me gritting my teeth. On top of that, I then had to flex the very muscle the needle was in; to take more readings.

This process took what felt like a couple of minutes; and once done, he proceeded to measure a muscle in my forearm, and then my bicep. After that it was the front of my shin, the calf muscle, and my upper thigh.

Again, he was very concerned with my well-being; but also rightly discerned that I was more interested in getting the test over than taking a break - so we powered through. Thankfully, as no issues were found on the left side, it was not necessary to proceed to the right.

I burst into tears as soon as I was outside. I can recall only one other time when a medical provider induced such pain that I was white-knuckling the surface of the exam table: after I inadvertently cut my finger open as a young teen; and the attending doctor had to examine the wound (and by extension, manipulate it while his assistants sprayed saline and whoever knows what else in there).

I didn’t think it affected me that badly; but I had to do my shot yesterday, and it was so hard. My hands were trembling, and on my first attempt, the needle barely even pierced the surface of the skin - I was that afraid of how much it could hurt.

Tomorrow I see my therapist. Our last appointment was, unfortunately, cancelled; so it’s been a while. We’ve been working on all the pent-up misery associated with my pre-immigration medical. That’s another subject swirling around in my head; and likely the root of a good portion of what I’m dealing with at present.

I was railroaded; moved through a medical assembly line like a non-person. Every time I feel as if there’s even a slight possibility that might be happening again, it all starts to come back - fear; the belief that I can no longer protect myself; that I am a target of contempt.

That brings me full circle; back to my upcoming MRI. There are several possible outcomes to this test: the best outcome, of course, would be that nothing of note is found. (This would suggest that the majority of my symptoms to date were caused by inflammation of my neural and nervous tissue; and as the inflammation naturally abides, so too will the symptoms.)

Another possibility is that I might have suffered a rare complication in which one’s own immune system attacks the nervous system. This is slightly more concerning, as one of the defining characteristics is permanent lesions of the white matter of the brain.

There is a third and final possibility: that the virus triggered a minor stroke. Such a thing would be unusual for a person of my age; as with so many other rare phenomena however, COVID has demonstrated exceptionally rare complications are surprisingly common once you are dealing with a virus that thinks little of the blood-brain barrier.

As you can imagine, two of the outcomes are terrifying in terms of their lifelong implications.

I’ll have my answer after Monday. For now, I’ll go back to ruing the godforsaken system of wealth transfer this country mockingly refers to as ‘health insurance’; knowing that I could have most likely had my results in hand much sooner if it wasn’t so absolutely vital to consult a third party on whether or not it was actually medically necessary to treat me.

02:35 AM.

Time to try again.

Absence

Apologies for not being particularly present of late; I’ve been dealing with some frustrating health issues.

As I noted previously, I was gifted a cold by a coworker in early December. The following week I contracted another respiratory virus. This was was rather more severe:

First, it induced acute bronchitis; the net effect of which is that I ended up in the ER with an oxygen saturation level of 85%. The blood tests, EKG, and chest X-ray all came back clear; so I was discharged with antibiotics and a course of steroids.

The day after, the virus began to affect me neurologically. My long-term memory, short-term memory, and focus all started to wane. I developed a sensation of weakness in my arms, palpitations, insomnia, severe anxiety, and an impending sense of doom.

The palpitations, anxiety, and sense of doom thankfully receded. Unfortunately, I also lost the ability to regulate my temperature and my blood pressure when changing position.

It looked like I was over the worst of it, until I spontaneously developed neuropathy in my lower limbs. That earned me another trip to the ER, where they ruled out - in their words - “Anything super-deadly”. (I also got my first ever IV catheter, which I found kind of annoying; and a lumbar puncture, which was pretty interesting!)

The neuropathic symptoms have also receded somewhat; but the weakness in my left arm has grown worse, and now there’s a tremor in my second and third fingers. I’m currently waiting on additional neurological tests to determine the cause (’waiting’ being the operative word; after all, heaven forbid I have an MRI without my health insurer getting to sign off on it first)!

I know where a lot of people’s minds are going to go given the timing, and I don’t blame them; but: it wasn’t COVID. Two antigen tests, three PCR tests, and a nucleocapsid antibody test all indicate that this was a routine respiratory virus that just got completely out of control.

Two fun sidebars though:

First: between the tests from last year’s check-up, and the tests from the ER, I discovered that my lymphocyte numbers are routinely low. As measures go, it’s not a one-to-one predictor of immune health; but it does suggest that there’s something not quite right with my immune system, and that this might explain why even minor illnesses cause me significant secondary issues.

Second: I’ve written at length about how COVID tests set off my PTSD. (It’s not a rational reaction; but one borne of my younger self confusing their invasive and required nature with past violations of my bodily autonomy.)

The second go-around at the ER, the nurse performing the test was extremely thorough and as a result, I experienced arguably the most discomfort of any test to date. However, I was able to manage the situation well; in large part, I now recognize, because that selfsame nurse had a warm and sympathetic bedside manner.

That leads me to think that it’s less the physical discomfort of these acts that I find triggering; and more that they are being performed without care or consideration for my person. I’m still trying to make sense of the ramifications of this insight; but it’s beginning to seem like the core of the problem is that I’ve been dehumanized in the past, and this is what I’m so afraid of happening again.

Two more tests

For the duration of my tenure with my current employer, there has been an IT Guy. He is older than me, and has twice as much practical experience.

Unfortunately, he is prone to failures of common sense. I know him as someone that chooses his tools based on his own personal level of interest (as opposed to their suitability), and frequently over-complicates each and every task in front of him.

It is not possible for him to be removed from the company; therefore he has instead been moved to a position in which his ability to disrupt IT proceedings has been minimized: that of company compliance officer.

For the most part he has left IT alone, except for occasionally requiring that we demonstrate our systems have various redundancies and backups in place. (This was spurred, in part, to mitigate against the possibility of a production system resource group being inadvertently deleted... after he did just that.)

A few weeks ago I walked into the kitchen to find him wearing a mask (uncharacteristic) and blowing his nose loudly. “Don’t worry!” he said, “It’s not COVID”! (Truly, confidence-inspiring.)

Well, wouldn’t you know it but a few days later both I and a fellow IT employee get hit with The Cold From Hell. So... I had to go get another test done. (Thankfully, no insane pipe-cleaner swab this time.) Fortuitously, it was negative.

All the same, my long weekend was ruined by the misery of illness. I return to the office, and have a talk with my boss about how our compliance officer - the man chiefly responsible for ensuring business continuity (i.e. that everything keeps working in the event of a crisis) - brought a transmissible illness into our work environment during a pandemic.

A week, nearly two goes by; and I suddenly develop a sore throat (welp) as Omicron numbers soar. My spouse - who contracted the cold from me - is likewise experiencing chest symptoms. So off we go, again, to get tested.

The chief reason I keep returning to the same testing location is because they do not require appointments, they are quick, and turnaround on results is usually within the hour. Thus, imagine my surprise when I see that the parking lot is completely filled with cars, and learn that turnaround time is now closer to six hours.

This Omicron business is something else. Part of my would like to write in detail about how we’re (a) right back to square one in terms of required measures to prevent transmission (quarantine; mask mandates; public gathering limits) and how (b) absolutely none of these things are happening.

i will defer for present. I was so convinced this time around that COVID had caught up to us; because I have never experienced before a common cold that caused a sore throat weeks after initial sinus symptoms; and this revelation initiated a twenty hour-long panic attack. I am desperately trying to put such things out of mind at present.

Suffice to say: the tests were negative. I am in many respects glad; but also concerned (for the cold is doing a real number on my lungs, and I worry how that might compound an actual COVID infection). Such is life.

I’m not sure there’s any moral in this story; other than the general sense that we could have handled the pandemic far better, were it not for the widespread lack of common sense that my coworker typifies... And that I am very much fed up of having my bodily integrity violated with sample collection swabs.

ADHD

Ah, so.

What can I say?

My daughter was diagnosed with inattentive-type ADHD this year. I also have three adult friends that are very open about their struggles with the disorder. Between the four of them, I've learned a great deal about the issue.

As often happens in these sorts of situations, I started to see the kind of symptoms they were describing in myself. It went from "Ah, I can relate" to "Why am I in this picture?" to "Wow, I seriously need to get myself checked out". (The straw that broke the proverbial camel's back was a set of compliance courses my employer requires be completed each quarter. The courses themselves are, empirically-speaking, poorly designed; but I struggled with them to such an extent - and my peers did not - that it really highlighted that we weren't having the same experience.)

There has already been an initial assessment; and the takeaway was that I most likely had ADHD too and that a fuller assessment was warranted (which is now scheduled for February).

In the interim, well: in the last three years I've transitioned; begun treatment for PTSD; and now, apparently, discovered that I require treatment for ADHD also.

I am familiar with the gross unfairness of only getting the help I need with the first two so late in life; and fully expect the same sort of feelings to hit me at some point regarding the latter. This hasn't happened yet; but we shall see.

(Not to mention: how the hell did I make it this far in life - let alone remain sufficiently functional to build a career and support my family - with three major irregularities in my brain structure and chemistry? I'm honestly nonplussed.)

Another Test

It came to my attention this afternoon that a colleague had left the office on Friday, feeling unwell; and come Saturday had tested positive for COVID. This individual is someone that works two offices down for mine and is often in close proximity.

This meant, of course, that it would be wise of me to go get tested again. The last time I was tested, it triggered a lengthy flashback.

(As always, I stress: my response to these kinds of medical scenarios is a result of my PTSD, and not an indictment of medicine. Get tested, get vaccinated, protect yourselves and others!)

Anyhow: I wasn't super thrilled about this turn of events, and let my boss know that I was heading out and most likely would not be back for the day. He did very kindly point out that we had some test kits in-office (allegedly; nobody seemed to know where); to which I countered that the last thing my coworkers needed to see was me in tears.

Fast forward: the system for registering an appointment at the test site worked well this time; and apart from a small hiccup (they had moved a mile down the road to a new location), everything was pretty much the same. The technician asked me to sit in the car and came back with a swab and sample vial.

Now, here's where things differed slightly: when my spouse was initially tested (all the way back at the start of the pandemic), the swap took the form of an elongated Q-Tip. Having this pushed all the way to the back of the sinuses was unpleasant; but I understand the discomfort subsided quickly as soon as the test was completed.

When I was tested for the first time, the swap had clearly been updated with comfort in mind: there was a thin, flexible plastic stem with a small, soft, sponge on the tip. It wasn't inserted fully into the sinus, and frankly, there was no pain or discomfort to speak of.

This is what I was expecting to see again; so imagine my unpleasant surprise when the technician withdrew from its sterile wrapping what I can only describe as a fiercely-bristled pipe cleaner.

The technician proceeded to tell me to hold my breath for five seconds, which was also a new and highly discouraging change in procedure.

I warned her that I might be somewhat unresponsive after the test was administered and not to take that personally; and she understood. Then came the part where I tilted my head back, closed my eyes, and felt this monstrosity enter my left nostril. The technician counted to five while sawing this thing back and forth along every side of my sinus cavity.

To be clear: I am no stranger to unpleasant sensations (which I will note shortly). This, however, was absolutely misery-inducing. I broke down crying the moment the technician turned away from me.

Six hours later, and my sinuses still hurt. They itch, constantly; and my nose has been running all evening. I cannot possibly fathom which person thought it was a good idea to take what was already an invasive, annoying test - and make it infinitely worse.

Dose three?

It is currently being reported that the federal government will shortly recommend that all two-shot vaccine recipients receive a third booster shot, approximately eight months after their second dose.

(Recommendations on boosting the single-shot vaccines are still being formulated.)

On the one hand: I'll do whatever it is I have to do to ensure the safety of my friends, family, and others; if that means getting a third dose of COVID vaccine, then so be it.

On the other hand: I've detailed previously how the first two doses each triggered a week of vicious flashbacks. (I still don't know why - I'm literally typing this right now with an arm sore from my second round of Gardasil; no major mental upsets.)

So... chances are sometime around the end of the year, the spouse, daughter and I will go round three on shots... And I will have to set aside time for another nervous breakdown.

(There's also a conversation to be had about the wisdom of Americans consuming three doses of vaccine each at a time when much of the world is struggling for adequate supply; although I am currently thinking of this as more an exercise in half of America taking the vaccine doses of the other half to protect themselves from the aforementioned other half that won't take their damn vaccine doses!)

Test

Last week I was at Minneapolis' very own CONvergence convention. A fantastic time was had! Obviously, attending a large public event in the current viral climate is not without risk; but I felt considerably more secure in matters given that (a) the organizers had capped attendance at 3,500 (half the size of the previous year), (b) required all attendees show proof of vaccination and (c) instituted a mask mandate.

Unfortunately, post-event, it was determined that an attendee has tested positive for COVID and had informed the organizers as such. They in turn notified all other event-goers, and provided information on the afflicted individual's path through the convention for contract-tracing purposes.

Unfortunately, it transpired that the two of us had attended a panel together; and despite the extremely unlikely possibility of having contracted COVID from this person, the sensible course of action was to go get tested myself.

This did not fill me with joy. As I have previously documented, there is a facet of my younger self - splintered by trauma - that bristles at certain medical interventions... And I knew this would be one of them.

At the start of the pandemic, my spouse required a routine medical procedure; and in advance of that, was required to get a COVID test. I drove them to the in-car test site, and my spouse rolled down the passenger-side window to talk to a fully geared-up nurse.

As many are no doubt aware, those first COVID tests required collecting a sample from the very, very furthest reaches of the sinuses; using what is essentially an extremely long Q-Tip. While not necessarily a painful experience, it can be irritating at best and deeply unpleasant at worst.

Both my spouse and I were a little taken aback when the nurse instructed them to tilt their head back and place their hands firmly on their knees because, and I quote, "Trust me, you will try to stop me".

The nurse swabbed my spouse's sinuses, and it was fine, and other than my spouse feeling like they had been somehow poked in the back of the eyeball, all was good. I, however, was a nervous wreck; because this act had in my mind overstepped the threshold of acceptable bodily integrity violation.

(How does that work? I can't say, as it isn't rational. I am pro-science, pro-safety, pro-vaccine; but the damaged part of me responds viscerally and insensibly to certain medical procedures - evidently of which, this was one.)

Later, my spouse experienced a terrible cold; and their general practitioner recommended another COVID test to be safe. This was at a walk-in clinic, and even though I remained in the car, I still ended up shaking at the thought that my beloved was being harmed in some way.

I have spent far too much time since then conceiving of how I might be required to submit to a COVID test myself some day, and how that would effect me. Fast-forward to that day.

There was a no-appointment clinic near our house. They have a rather slick online registration system; there were some issues completing the process, but a person met me at the parking lot and helped finalize matters. Then they went to retrieve their test apparatus.

Now, to the credit of the test manufacturers: they had clearly taken steps to improve the (deservedly-maligned) collection kit. The swab was a little shorter; no longer needed to reach the very back of the sinuses; featured a very slim, flexible stem (particularly helpful for deviated septum-sufferers); and the cotton tip had been replaced by a small, gentle sponge.

The technician was very nice and explained that they would gently hold the swab in place for the count of five, and in turn I explained that I'm sure everything would be fine and painless - but there was a possibility that I might become upset afterwards and that it was absolutely not their fault.

Then I scrunched up my eyes and held my hedgehog friend very tightly and the technician inserted the swab in my nose and ran it about inside my head and true to her word, the experience was not in the slightest bit unpleasant.

I then proceeded to thank her, albeit stutteringly, because as predicted this invasion of my bodily space had still had a triggering effect. I received my results less than an hour later and they were, of course, negative. Three hours after that, I stopped crying.

It's so strange - yesterday I had laser hair removal; and per my request, the technician turned the power up quite high. There were some moments when it really stung; but... nothing. Not a trigger. Likewise, in a few days I have to get my second HPV immunization; and despite knowing that it will sting (the manufacturer attests this to the "Virus-like particles" it contains), that should be fine too.

Why am I freaked out by some medical procedures, and not others? I really don't know. Probably there's a logic to it; but if there's a pattern, I've yet to discern it...

Yet another night terror

The fever dreams continue; alas, taking a turn for the worse. Last night's dream featured my spouse and I perambulating through a cave filled with snow; I kicked ideally at a pile of snowflakes, only for some kind of hag to burst out from underneath and tackle me into what I knew to be a very, fatally deep pit.

Then came the screaming; and waking, heart racing.

I don't know what's going on right now - I keep ascribing these sorts of negative impacts to work stress and ill health - but the effects feel disproportionate to the stressors. Hopefully either I can get to the bottom of things soon, or else they ease up; because this is exhausting.

Fever dreams

Between stress and a good old-fashioned rhinovirus, I've been having a lot of strange dreams; last night was no exception.

First, I dreamt that an Italian man was attempting to seduce me. (I'm not sure why my fevered brain opted for a Mediterranean origin - perhaps because I knew an incorrigible duo of Italian Lotharios in my younger years?)

Naturally, I rebuffed him - I'm a married woman!

Second, I dreamt that I was hurriedly pacing an unfamiliar street, with only an undersized towel to hide my modesty. I was of course then approached by several men with the intent to perpetrate a robbery at a gunpoint. (Most unpleasant stuff.)

Interestingly however: in both instances, I was incredibly aware that (a) I was trans, and (b) in the dreams themselves, fully physically transitioned (to the point that the aforementioned Casanova was mistakenly under the impression that I was cis).

Until now, my dreams have generally been modeled on my former identity and appearance; and it is both fascinating, and long overdue, to see them finally catch up!

Well woman

A few week’s ago I had an annual check-up; the first in two decades. (Hooray for America’s dysfunctional healthcare system!) I wasn’t particularly concerned ahead of time; but then I received an automated reminder from my provider that had the appointment listed as a “Well Woman Exam”. This lead me down a bit of a rabbit hole as to exactly what that entailed; and then I proceeded to freak the fuck out. Even now, I’m not entirely sure what the problem was - there was definitely some anxiety centered on the more intimate aspects of this kind of exam; but having spent a significant amount in analogous settings (e.g. laser hair removal), I didn’t think this was the issue. (There’s also the matter of my PTSD cranking up in some medical settings; but again, there doesn’t seem to be a particular rhyme or reason as to why and when that fires off... or doesn’t.) A friend suggested that perhaps the issue stemmed from having to speak to my provider, openly and honestly, about my transgender status. My provider is a very nice fellow, and has a fantastic bedside manner (something of a rarity in the US); but even so, transitioning is in many respects a form of magic, and pulling back the curtain on how the trick is performed is not fun. When the actual day rolled around, my heart was racing; and I had to apologize repeatedly to the nurse practitioner for my ridiculous pulse. Thankfully everybody was very understanding; and my provider made the necessary conversations about as straightforward and easy as they could be. (It actually turned out that between various changes in recommended screening guidelines and where I am in my transition, that there’s basically nothing to screen for for the next five years or so; so no poking or prodding there.) I did elect to get caught up on some immunizations while I was there; including getting the HPV vaccine (which is now recommended for everyone, up to the age of forty-five). The administering nurse was perfectly nice; but her technique was slow and methodical (not what you want when getting needled); and the HPV vaccine in particular stung something fierce (which I guess is a known issue with whatever they put in it). In the end, everything worked out okay; but I worry that there will be more of this sort of thing in the near future - I’m out, and as far as the majority of big ticket items are concerned, transitioned; but I feel far from confident in my newfound place in the world as a woman or my ability to pass, and it’s going to be quite some time until that changes.

Dose two: addendum

I feel like I might have spoken too soon on my COVID vaccine side effects dying down; I’m now four days post-hoc and it feels like I still have some issues (muscle aches and swollen glands on the injection side; feverishness if I overexert myself).

It’s physically irritating, mentally debilitating, and it only fuels my anger more towards the sum group of people inflamed this situation for their own selfish reasons.

(I will also add: a couple of years ago, the spouse and I caught a very strange, persistent cold virus; the lymph nodes in my upper torso and neck flared up like nobody’s business and remained that way for almost eight to ten weeks.

It scared the hell out of me, as that kind of persistent swelling is generally associated with far worse ailments; and I was still in my passive ideation phase at the time and was pretty convinced that This Was It. Thankfully it went away on its own; but in retrospect, I’m realizing that this episode might be another unprocessed issue I now have to unpack and deal with.)

Dueling thoughts

Alas, though a known quantity, the spouse, daughter and I are all experiencing side effects from our second COVID vaccine dose. It’s the usual suspects - chills, fever, muscle aches, injection site soreness. It’s on par with getting hit with a really bad cold - much worse than one normally would expect from a vaccination; but manageable.

Mentally, it’s not been great. Every sting, every twinge reminds me that this is happening; and that gives the very irrational and truculent part of my psyche - the part where my wounded, child self lives - reason to fire up.

I came back last night from an errand; and having arrive home, just sat in the car and sobbed. In that moment, I was able to watch the two halves of my - child and adult - argue in real time:

“Why did they put this in me?” “Because it’s good for us. It will protect us, and others.” “Please, please take it out. Please.”

Adult me knows that this is undeniably the right course of action; for myself, for my family, for others, and ultimately for the entire human population. This is the only humane way we have out of this crisis.

Child me does not care; this suffering was forced upon her (even if only be necessity), and she rejects it wholeheartedly. It’s probably going to be at least a good week before she quells down; and in the meantime, I can expect plenty more crying fits and other associated behaviors.

More generally - this far from unique to myself; but I have so much anger for the people that mishandled the pandemic, irresponsibly exacerbated matters, damn near killed my best friend and most certainly killed millions of others. Lives were stolen; for the rest of us, precious time. I don’t know if it will come, but there most assuredly needs to be a reckoning when all of this is said and done.

Dose two

Well; three weeks later, and we got our second COVID vaccine doses.

Although I wish this was not the case, I went from zero to full-on flashback in bout twenty minutes; and expect to remain in some variation of that mindset for the next few days.

I would like to stress for the new reader: this is not a side effect of the vaccine, and I strongly recommend that (where medically possible) everyone get it. This is purely my past history interacting with current events.

On the bright side, in a little over two weeks I will start treatment with a new EMDR therapist. I am very much hoping that goes a long way towards bringing these sorts of undesirable episodes under control.

Scars

I should probably preface this with a content warning for discussion of self-harm.

I’m left-handed; when I’m receiving a vaccination or having blood drawn, I will normally offer up my right arm - as was recently the case when I received my first COVID vaccine dose.

While staring at my arm in the mirror, I realized that I had self-harm scars that are still very visible; and based on their appearance, very obviously self-inflicted. (This is not the case elsewhere - they have either faded, or are normally hidden.)

I’m mortified, as it means the provider that administered my dose absolutely saw them (and will again, as I tend to get pretty mean injection site pain and I really don’t want to experience that in my dominant arm).

More generally though, it got me thinking. The reason I struggle with others seeing what I did to myself is not because I’m ashamed, but because on some level I feel that my suffering was not legitimate - that I hurt myself not because I was truly in pain, but for attention. An imitation of the struggles of others.

There isn’t really a good answer here; just another piece of the puzzle to make sense of.

Dose one

Yesterday the wife, daughter and I got our first COVID vaccine doses. We go back in three weeks for the second dose. There haven’t been any real side effects barring the usual sore arm and some very minor feverishness / muscle aches.

(I have been lead to understand that the second dose may result in stronger side effects, which makes sense. An older fellow at the clinic told me in passing conversation that thanks to his second dose, he had experienced hot flashes and was now highly sympathetic to the plight of menopausal women.

This got a giggle from me; when I started HRT, my estradiol injections were spaced too far apart and as a result I would effectively experience menopausal symptoms. I replied with “I know how that goes!” and left it at that...)

Mentally however, I am struggling a bit. I will preface this with two items:

I am pro-science and pro-vaccine. I understand that no vaccine can be 100% safe; however, the odds of something going terribly wrong are far, far lower than if you contract COVID.

I had a very, very bad flashback the other night; one that practically set a new bar in terms of intensity; and I’m still feeling some of the effects from that days later.

So: I get very upset when I perceive my bodily integrity (or that of people I care about) being violated. The key factor is my consent. For instance:

At the end of my visa medical, I received two vaccinations. I took offense at (a) not being informed beforehand that this would happen, (b) the administering provider’s refusal to explain what they were for, and (c) the generally dehumanizing treatment I had been exposed to that day. (I have no problem with receiving vaccines as a prerequisite of entry to the US; it was how the process unfolded that was the issue.)

I have never had chickenpox, and elected to receive the varicella vaccine. Everything went smoothly, and I’m glad I made that choice.

To bring us full-circle:

I want to do my part to get us out of this pandemic; and that means being vaccinated. However, I cannot shake the feeling that this is being forced upon me - not by the nebulous puppet-masters that anti-vaxxer conspiracists like to point to, but by the various government institutions that prioritized partisan politics over protecting people, and the self-same people that prioritized their right to endanger others else instead of covering their stupid fleshy talk circles with a bit of cloth and knocking off the partying for a while.

It doesn’t sit well.

Alas, there’s not a whole lot I can do about this as the requirement to be vaccinated still stands; but it does rather mean that I have yet another reason (and I already had plenty to begin with) to intensely dislike the swathe of selfish misanthropes revealed during the course of this crisis.

Sleeping arrangements: addendum 2

I have been reliably informed that my previous illustration of the idiosyncrasies of flashback-driven sleeping positions did not sufficiently emphasize my spouse's ample biceps; I have therefore attempted to rectify this issue as follows:

Sleeping arrangements: addendum 1

This has obviously been on my mind, but it was only very recently that I was able to connect all the pieces.

I believe that I was subjected to some kind of trauma during my early childhood. I have no memory of these events; but evidently they left some kind of impression on me because I experience flashbacks.

Some factors that trigger these episodes include high levels of general stress; moments of emotionally-charged interpersonal conflict; and nighttime. (Also: certain bedroom activities that are probably best skipped here.)

Well: I have a lot of undischarged stress at present; so come nighttime, things get... flashbacky. Generally what happens is that the spouse and I end up falling asleep like this:

Now, I really want to stress that my spouse is awesome; they always makes sure to communicate that I'm safe, and if I want to be closer that's okay, and if not, that's okay too. There's nothing they’re doing in this scenario that's an issue.

For me though... Well, as the diagram indicates, there is a Zone Of Safety at the corner of the bed and moving outside of it induces anxiety.

When the flashback reaches peak criticality, I'll move off the bed entirely and on to the floor. (It used to be that I would relocate to our walk-in closet, but apparently the space between the bed and the wall is now sufficiently protective per my brain.)

So here's the last piece of the puzzle: when trying to explain this situation to a friend last night, it occurred to me that I had things the wrong way around. The problem is not that I have to be on the floor; the problem is that I can't be in bed with another person.

It's not safe.

...And that brings us full circle. As I stated: I don't know what the nature of the initial trauma was that began things. Based on this latest clue however, the implications are clear... and I can't say I like them.

Darker

If my writing has taken a slight turn towards the darker of late, it’s because of this:

I have a tremendous aptitude for self-denial; specifically when it comes to convincing myself that I am not worthy of focus and attention (and thus by extension my concerns, challenges, and issues).

This is of course most notably exemplified by how I managed to deny the obvious regarding my transgender status for so many years.

When I did finally come to that conclusion however, I was at least thankful that I had escaped a lot of the vicious side-effects that other trans individuals faced: crippling dysphoria; self-loathing; depression; a propensity for being predated on, and so on.

What I’m now recognizing is that I did experience many of these things; but could not express them in terms that made sense to myself (let alone other people). This is a good thing; but it also means exploring those thoughts and memories, and I do a great deal of that work here.

So: nothing to worry about here; just digging through an old Pandora’s Box!

Ponytail

At the age of fifteen I decided to grow my hair out and tie it up. It stayed in a ponytail for twenty-two years (excluding a brief period where I was foolishly convinced to cut it); even when swimming, or at night.

(In retrospect, I really wish I had been kinder to my hair; I’ve been fortunate to retain my hairline, but there’s some thinning at the front and I’m convinced that this isn’t age but rather, mild traction alopecia. Alas; live and learn.)

Leaving my hair down felt... physically uncomfortable. It was a rarity.

Fast forward to today, and I had temporarily tied my hair up to keep it dry in the bath. It didn’t occur to me until after: “Why does my hair feel so weird?”... And it was then that I realize that I still had the tie in.

It’s fascinating to discover that there are actual, physical sensations associated with my gender and how it might be perceived by myself and others!

Incomplete sentences

Sometimes, when I’m writing, I will omit words or even entire portions of a sentence. I don’t know why this is; only that it’s something I’ve done for a very long time.

The solution is, of course, to proof-read vociferously. Ironically however, I will often not notice that I have made this mistake because my brain kindly fills in the missing detail instead of alerting me to its absence.

I note this because I know I have written posts previously that suffer from this issue; and I’m sure there will be more in future. To that effect, dear reader: thank you for your continued patience, and understanding!

Nouns

An interesting and unexpected part of transitioning is the process of adjusting the nouns I use in my inner monologue.

For instance, just this morning, an item fell out of the kitchen cupboard and I jokingly thought to myself, “Can’t a guy catch a break?!”...And then I corrected myself to “Can’t a girl catch a break?!”.

I think the reason this is taking so long (versus say, adapting to my new name and pronouns) is because there isn’t any one thing that needs changing - rather, I have a large library of gendered idioms, each and every one in need of updating.

On the bright side, I don’t get quite so upset about it nowadays; so I would call this a plus!

Identity crisis: addendum

As a follow-up to my earlier post:

I have a friend that lives in Texas. He is eighteen; and was in the process of learning to drive when the pandemic struck. He recently visited the state DMV to renew his learner’s permit; and much to his surprise, was given a full driver’s license instead.

I get it; they are trying to keep the system working under a difficult set of circumstances. All the same, my friend is attempting to continue on with his driving education, for what he holds in legal capability, he lacks in actual practical experience and confidence.

This is what it feels like to become an entirely different gender at 37. I’m legally a woman, but I have no idea what I’m doing.

Identity crisis

I came across an interesting article recently, of the “Ten signs your self-esteem is in the gutter” variety. My self-esteem has indeed been in the gutter these past few days, so it was certainly a topical read.

A major reoccurring theme was: “Self-esteem should be a function of how you see yourself; not how others see you”.

This makes a lot of sense: self-esteem is, by definition, the measure of the value we place on ourselves. However, only we can truly know what is in our hearts, our minds; each and every facet of our person; who we truly are.

This unfortunately poses a challenge for me; as I do not, in fact, know who I am.

A person in my orbit once told me that he felt as if he had a mask for every occasion; a performative persona that he would adopt depending on the audience. However, he could not discern the person behind the mask; and this troubled him greatly.

It’s a sentiment I can sympathize with. I feel as if my personal identity is not a unified whole, woven from many individual threads; but rather, a fractured collection of parts that do not interrelate.

Matters have of course further been complicated by my gender upheaval; because one of the foundations of my character was that of a man, a husband, a father. I am none of these things now; and while I have technically replaced these epithets with woman, wife, mother; I don’t feel as if I actually have the requisite underpinning of experience to claim them.

As my friend Abigail wryly noted: we are women, born yesterday.

For now, I default to a measure of self-worth familiar to many raised male: that of one’s utility. As I am stretched rather thin at present, this does not seem to be working well; and alas, brings us full circle: it is a function of how others see me; and not how I see myself.

Another night terror

I had another terror episode last night. As with the previous episode, it was quite absurd in nature. I am mixed on whether this signifies a dearth of creativity on the anxiety-driven part of my brain, or that it is now entering some kind of postmodern phase.

Initially I dreamt that I was in my bed; and that it was nighttime, but there was just enough light to cast shadows. These shadows were sufficiently menacing (and there was a distinct impression that they were trying to resolve into the shape of people) that it became imperative that I extinguish all sources of light.

Enter into this scenario: an aquarium-themed night light (the same one that had kept my daughter company during her infant days). Not only was this thing on full brightness, but it had cunningly placed itself on my wife’s side of the bed - just out of reach.

That’s when my brain pressed the Adrenaline Dump button and I screamed awake.

Here’s the part that confuses me: I wasn’t terrified by the possibility that the night light would bring these Shadow People into being; I was terrified of the night light itself. Now how the hell does that work, brain?!

It’s bad enough I have these episodes. Could they at least be something genuinely scary?

Unexpected HRT side-effect #10

 Confusing simple homonyms.

For context: while I am not dyslexic, there are certain idiosyncrasies with how my brain inputs, organizes, and outputs information that resembles a mild form of that particular disorder.

One example would be: analog clocks confuse me. My brain takes great umbrage at the hour hand - which is the larger unit of measurement - being represented by the smaller hand; and vice versa with the minute hand. If I need to read an analog clock, I have to manually reassert the correct order of the hands in my head; and this happens with each and every attempt.

Another is that certain words have unintuitive spellings (e.g. ‘Wednesday’; ‘business’); and I have to intentionally mispronounce them in my head to recall the correct spelling.

These are not major impediments; but are something I deal with on a daily basis. (As to why this is, I have no idea - there is a known association between left-handedness and dyslexia, so perhaps this has something to do with it; it could also be a result of the structural mismatch between my brain and body).

After starting HRT, I noticed that I was regularly confusing simple homonyms - ‘to’ and ‘too’; ‘now’ and ‘know’; ‘their’ and ‘they’re’; and so on. While I’ve been dealing with this problem my whole life, the actual set of troublesome words has been fixed since childhood; so it’s kind of interesting to see not only the set now expand, but with basic vocabulary that has never posed an issue before!

Night terror

Last night I had a very strange night terror episode.

Normally I will be dreaming, and things will get progressively more anxiety-inducing - e.g. something will be chasing me, or I’ll be trying to fight off an attacker. Then my brain will conjure up a truly terrifying phenomenon (like shadow people launching themselves at me en masse) and I’ll scream myself awake.

This time though, I dreamt that I was in my bed... And that God (who I don’t actually believe in) was beaming sound into the fan next to the bed, so I would hear it... And that sound was: cat litter being poured.

Then the screaming started!

I really, really don’t know what my brain was thinking last night.